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Being born with a disability or acquiring
one later in life can be a difficult challenge for anyone to overcome.
A person with a disability, without any previous notice, is suddenly
faced with several issues that need to be addressed. Some of these
issues are: learning to cope and live with a disability, accepting
having a disability, adjusting to a new lifestyle, and, perhaps,
most importantly, dealing with peoples attitudes towards ones
disability.
Good support system necessary
In order for a person with a disability
to overcome the challenges he/she faces, it is essential to have
a good support system. This can include family members, friends
and people who are involved in the individuals life. The Independent
Living Philosophy promotes the belief that persons with disabilities
have the same right to be treated with dignity and respect as any
other individual and respecting the individuals decisions
allows him/her to take charge of their life, thus becoming independent
to the best of his/her ability. It is a concept readily accepted
in some cultures, but not all.
Strong family bonds
a two sided coin
Those who are new to the philosophy do
not embrace the Independent Living philosophy especially when it
contradicts their cultural beliefs. Because family is so important
in Latino culture, family members believe that it is their responsibility
to care for one another under any circumstance. In many immigrant
families it is unheard of for adult children to leave home when
they turn 18 or 21 years of age. They often live with their parents
until they get married. If those same adult children attend college
or secure employment after completing high school they often choose
to live with their parents while doing so. Having such a close relationship
among family members is an advantage for the most part, especially
if a member is going through a difficult time. The bond that characterizes
the Latino family is very strong. One could say that this familial
bond is one of the best qualities of Latino culture, but it can
also be detrimental for a person with a disability seeking independence.
Being "taken care of" vs.
becoming independent
In many immigrant Latino homes a family
member who has a disability is seen as an individual that needs
to be "taken care of". Culturally it is the familys
duty to do so and, more often than not, the family can become overprotective.
Suddenly the person becomes a "victim" of the disability
instead of a "person with a disability". The family begins
to make decisions on their behalf as part of their obligation and
commitment to care for them as family members. The idea of assisting
the person in overcoming the challenges of having a disability and
working towards becoming independent is unrealistic to the family
and the individual as well. They may believe that the persons
life is over, not understanding that nothing could be further from
the truth.
Philosophy that may contradict cultural
belief
These issues are not new to those of
us who serve this community. Trust, understanding, and respect of
cultural differences can create a positive setting for introducing
a philosophy that seemingly contradicts cultural belief. Only when
independent living philosophy is introduced in a culturally appropriate
manner can people of immigrant ethnic groups benefit from the opportunities
available to persons with disabilities living in this society.
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